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Useful Links

The following websites may be of interest to people with Multiple Sclerosis and anyone affected by MS.  This list of websites is not definitive and we welcome information about any other links that people with MS may find useful.  These can be emailed to This email address is being protected from spambots. You need JavaScript enabled to view it. and we will add them. 

Click the title or logo to visit the website.  The links to external websites are provided in good faith and for general information only.  The Chilterns MS Centre Limited makes no representation or warranty as to the completeness or accuracy of any external content.  The views expressed on external websites are those of the author or organisation and do not necessarily represent those of the Centre, its members or trustees.

Multiple Sclerosis National Therapy Centres (MSNTC)

This organisation represents around 50 local and regional MS Centres around the UK.  Visit this site for information about the Centres (including a “Find Your Nearest Centre” search.

Shift.ms

Shift.ms is an online community for younger people with MS.   Shift.ms aims to create a positive, enabling community for people with MS which empowers them to acknowledge their MS, rethink how to achieve their ambitions and get on with their lives.

 

Multiple Sclerosis Research

Multiple Sclerosis Research is a blog from Barts and the London School of Medicine and Dentistry which describes itself as ‘a blog for people with MS and their families “interpreting good, bad and other research news’”

 

The Carers’ Trust

The Carers’ Trust provides support, information, advice and services for the millions of people caring at home for a family member or friend.  Their Network Partners reach carers of all ages and with a range of responsibilities, in their local communities.  From helping carers to access local services, to making their views heard by opinion formers and professionals, together they help carers to connect with everyone and everything that can make a difference to their lives.

 

MS Register

The MS Register is designed to increase our understanding of living with MS in the UK.  If you are over 18, living in the UK, with a confirmed diagnosis of Multiple Sclerosis you can take part in this ground-breaking study and “Help make sense of MS”. 

 

The Great British Public Toilet Map

This is a map of UK public toilets with helpful information about their facilities and access.

 

The MS Society: Together to beat MS

“More than 100,000 people in the UK have MS.  We’re fighting to improve treatment and care to help people with MS take control of their lives.  And with your support, we’re funding research to help beat MS for good.”

 

The MS Helpline on freephone 0808 800 8000

The MS Helpline is available to give free and confidential information and support to anyone affected by MS from 9am-9pm, Monday-Friday.  

 

Publications

For a list of all the MS Society’s key publications showing the latest editions and revisions or call 0300 1000 801. 

To contact the MS Society Information Team: Email This email address is being protected from spambots. You need JavaScript enabled to view it.

Asians with MS

Visit http://twitter.com/AsianswithMS  and http://www.facebook.com/AsiansWithMS

Multiple Sclerosis Trust Blog

A blog about the work of the MS Trust and the experiences of people affected by MS, looking behind the headlines at new developments and issues

 

Shannon Dean's Carers' Blog

The daughter of a Chilterns MS Centre member; a young carers' blog

 

Henny's  Chiltern MS Blog   (Henny Whitsun-Jones)

Full of the daily thoughts and views of an MSer! 

 

What Allergy

For anyone living with food allergies, eczema and asthma, including possible treatments such as hyperbaric oxygen

Transport links Companies that provide affordable door to door transport services. 

Dial a Ride

Provides affordable door to door transport services available to every person in the area who is unable or finds it difficult to use other forms of public transport.

Aylesbury Tel: 01296 330088
Wycombe Tel: 01494 441818
Chiltern and south Bucks Tel: 01494 766123

 

 Wendover Community Cars 

All drivers are unpaid volunteers providing an affordable door to door transport service. Donations are requested towards the running costs. Tel: 01296 317769

 

Mobility Hire 

Supplier of mobility aids nationwide on short or long term hire

 

Mobility Equipment Hire Direct

Mobility equipment hire and rental worldwide.

 

Mobility at Sea

Provides hire of everyday living aids to enhance the cruise experience. Delivered direct to your cabin on all major cruise liners.

 

The CEA card

The Cinema Exhibitor’s Association ensures participating cinemas make reasonable adjustments for disabled guests when they go to the cinema, including easy seating and toilet access; in particular a complimentary ticket for someone to go with them. The CEA card costs £6 on application. To apply on line visit www.ceacard.co.uk

 

The Calvert Trust

Challenging disability through outdoor adventure. Their centres offer a wide range of accessible activities. Whether it be a family holiday you are after or something different for your respite care their centres could be for you! visit  www.calvert-trust.org.uk

 

The Good Care Group

A care provider that are regulated and approved by the Care Quality Commission (CQC). They specialise in providing 24 hour live-in care at home on a permanent or respite basis for people with Multiple Sclerosis as well as Dementia, Alzheimer’s and other conditions. Live-in care offers a great alternative to residential care, and those who receive it see an improved quality of life and wellbeing. 

 

 

Alpine HC

A care equipment provider working with hospitals, care homes and private domestic individuals. The company manufactures hospital homecare beds, pressure mattresses and cushions, and patient handling equipment, as well as supplying a wide range of wheelchairs, mobility aids and bathing equipment. Alpine HC works with people with multiple sclerosis, predominantly providing profiling beds, offering equipment advice and support, and carrying out delivery and installation into domestic homes.

 

 

Jo Fielder's Blog

Welcome to my blog about the journey I’ve had so far with MS. I’ve not done anything like this before so writing this blog will be a journey in itself!


Holiday Locations for those with disabilities

Wanting to go on holiday but not sure where to go? Members Angie Burton and Beverley James have put together some suggestions of destinations that are geared up to accommodate those with disabilities.